Showing posts with label Awareness. Show all posts
Showing posts with label Awareness. Show all posts

Wednesday, October 5, 2011

Alliance for Lupus Research Virtual Walk


Walk with Us,

America!

Saturday, November 12th, 2011 

ALR Virtual Walk Day

In 2011, the Alliance for Lupus Research launched Walk with U.S., Walk Local Cure Global Virtual Fundraising Event.  The virtual walk allows people around the country to raise crucial funds for lupus research and increase lupus awareness by walking anywhere they want and with anyone they want.  Thousands of ALR supporters across the country will join our quest for a cure and walk virtually on November 12th, why don’t you join us?  100% of every dollar raised through the ALR’s Walk with U.S., Walk Local Cure Global Virtual Walk goes directly to support lupus research programs. 

Walking for a cure is easy, empowering and fun! Gather your friends, family and coworkers on Saturday, November 12th, choose your own walk site (local park, your neighborhood, parking lot, or corporate complex), walk length and time. There is a $20 registration fee to participate, and all walkers are encouraged to fundraise and solicit support from family, friends, co-workers and business associates to raise even more for lupus research. 

Together, we will find a cure. The mission of the Alliance for Lupus Research (ALR) is to find better treatments, prevent and ultimately cure systemic lupus erythematosus (SLE, or lupus), a debilitating autoimmune disease, by supporting medical research. Because the ALR Board of Directors funds all administrative and fundraising costs, 100% of all donations received go directly to support lupus research programs. Founded in 1999 by Robert Wood Johnson IV, a member of the Johnson & Johnson family and owner of the New York Jets, after his daughter was diagnosed with lupus, the ALR has become the largest private funder of lupus research in the world.  To date, the ALR has committed over $65-million to innovative and aggressive lupus research. 

About Lupus Lupus is an autoimmune disease that can affect almost every major organ in the body, including the heart, kidneys, skin, lungs and brain.  Symptoms are unpredictable and can range from fatigue and joint pain to severe organ damage. Too often fatal, lupus is extremely difficult to diagnose and treat.  The US Department of Health and Human Services estimates the number of Americans suffering from lupus at approximately 1.4 million–making lupus more common than leukemia, muscular dystrophy, cerebral palsy, multiple sclerosis and cystic fibrosis. Although there are many men and children living with lupus, 90% of those diagnosed are women.  Lupus is 3 times more common in African-American women.  Women of Hispanic, Asian, Pacific Islander and Native American descent are also particularly vulnerable.

 

Get Involved Today Join the ALR quest for a cure as an individual supporter, or sign up a team and recruit support from your circle of friends, family and co-workers! 
Visit virtualwalk.lupusresearch.org to register online or call toll free, 1-866-WALK-ALR.



For additional information, contact Heidi Aldama at 773-283-4533 or email, haldama@lupusresearch.org

Alliance for Lupus Research ∙ 28 West 44th Street, Suite 501 ∙ New York, New York ∙ 10036 ∙ 1-866-WALK-ALR ∙ virtualwalk.lupusresearch.org




National Virtual Walk





Tuesday, August 30, 2011

May is Lupus Awareness Month 2011

                                

MAY IS LUPUS AWARENESS MONTH


















Roll Back Malaria
World Malaria Day 2009

Tuesday, May 10, 2011

May 10th is World Lupus Day

Musician and Philanthropist Julian Lennon to Elevate the Global Profile of Lupus

April 20, 2011 

The Lupus Foundation of America National Board of Directors Names Julian Lennon as Global Ambassador

(Washington, DC) April 20, 2011 −
Musician and philanthropist Julian Lennon has been named Global Ambassador by the Lupus Foundation of America’s (LFA) National Board of Directors. The role of the Global Ambassador is to elevate lupus on the world’s health agenda, and increase awareness of the needs of the more than 5 million people living with lupus and their families around the world.

As Global Ambassador, Lennon will support public awareness initiatives to observe World Lupus Day on May 10 and Lupus Awareness Month throughout May. Lennon will also help to raise funds for lupus research, including the Lucy Vodden Research Grant Award, which was established last year by the LFA and Julian Lennon. The grant is named in memory of Lucy Vodden, Lennon’s childhood friend, who lost her battle with lupus in 2009 at the age of 46. Lucy was the subject of a drawing Lennon created which inspired his father, John, to write the classic Beatles song, “Lucy in the Sky with Diamonds.”

“I am thrilled to take on this role in honor and tribute to my friend Lucy,” said Lennon. “I look forward to working with the LFA on behalf of all individuals living with lupus around the world.”

Lennon has been a long-time supporter of raising awareness and funds for lupus research.  In 2009, he and musician James Scott Cook released the song “Lucy” in honor of Vodden. Proceeds from the song benefited the LFA and the St. Thomas’ Lupus Trust in London.  Lennon was also recognized for his support with the Butterfly of Hope Award during the LFA’s inaugural New York City Butterfly Gala last year.

“Julian Lennon’s efforts will go a long way to draw global attention and resources to lupus, a disease which remains under-recognized and under-appreciated,” said Sandra C. Raymond, President and CEO, Lupus Foundation of America. “We also look forward to continued collaboration with the entire global lupus community to expand efforts to raise awareness of this disease.”


Photo courtesy: Paul Harmer

Thursday, March 24, 2011

Tuesday, May 27, 2008

America's Next Top Model (ANTM) Mercedes Video Clip

ANTM Mercedes on Lupus Awareness

This young lady is the most requested topic in Life Beyond Lupus.
Here is a brief awareness clip with Mercedes from the LA Lupus Lady: