Well rats on Mabel! ((((((((((((Loretta dear)))))))))))))loving youkaryl
Hi LorrettaI'm sorry about all that you have faced. I wish I could say it gets better....well, yes, there are good days...we just never know when those will be...hard to make plans because we never know when to expect the bad ones...I've been diagnosed with SLE for 8 years. I was sick for 2 years before that but was misdiagnosed and treated for completely wrong illness...I have just set up a journal today and haven't begun yet, but I will visit yours and maybe get some hints of how to design. I have no idea or experience, but am excited about this creative outlet.Teresa Freethinker1259
Hi Freethinker (GREAT handle!)I am so happy you found this journal, although I am truly sorry that you have suffered so with lupus. PLEASE, PLEASE send me your link so I can visit your journal. If you'd like I can also include your link in my journal. The more the merrier. There are three other women with lupus (that I know of) who also have online journals. There LINKS are available in my list on the lefthand side. You can also meet a lot of lupus friends on AOLs Message Board for LUPUS.Many blessings to you. I look forward to getting to know you!Loretta
I want to know if by chance you wake up in the middle of the night or for one reason or another just can not go to sleep....are there any chat rooms open to express your feeling on this dang disruption in my life (LUPUS).....please someone e-mail me...and let me know where to go.....DPhill7758@aol.comThank you.....seems this dang thing in me is getting to be a problem....please let me know..where and who I can talk to about it....you see...I am the only one in my family that has this.....well, thinking about it...none of my friends have it either....LOL...laughing here..but you have to....please help.Thanks.Dorinda
Hi Dorinda!I know what you mean!You need some lupie pals.Here is AOLs Lupus Chat Room Schedule:Lupus Support ChatsCommunity Standards - Please read before entering the chat room.You can also discuss this topic on one of our Lupus message boards. Sunday8-9PM ET: AOL Lupus Chat RoomJoin HOST HLTH Marty and others for an open discussion about lupus.Monday7-9PM ET: AOL Lupus Chat RoomJoin HOST HLTH Rdwolf to chat with others about lupus and how it affects your life, as well as those of your family and friends.Wednesday11PM-Midnight ET: AOL Lupus Chat RoomJoin HOST HLTH Marty and others for an open discussion about lupus.ThursdayNoon-1PM ET: AOL Lupus Chat RoomJoin HOST HLTH Scooby and HOST HLTH Lisa to chat with others about lupus and how it affects your life, as well as those of your family and friends.7-8PM ET: AOL Lupus Chat RoomJoin HOST HLTH Anney, HOST HLTH Sally and others for "Lupus Fun Night."Friday8-10PM ET: AOL Lupus Chat RoomJoin HOST HLTH Lupus to chat with others about lupus and how it affects your life, as well as those of your family and friends. And here is where you can find the Lupus Chat Room I do not have a link so please follow my directions. If you get stuck, e-mail me and I will get you there...'kay?1) Type in AOL SEARCH : LUPUS (or cut and paste link below)http://aolsearch.aol.com/aol/search?encquery=86CB64D396BEABE0&invocationType=keyword_rollover&ie=UTF-82) Underneath the top picture on the left you will see HEALTH CHATS...click that.3) In the center column scroll to LUPUS SUPPORT ....click that.That will set you straight to the chats room.
Now Dorinda, I am going to talk you to the Lupus Message Board.There is usually someone online there anytime day or night. There are so many great people to meet there.Once again:1. AOL SEARCH : Lupushttp://aolsearch.aol.com/aol/search?encquery=86CB64D396BEABE0&invocationType=keyword_rollover&ie=UTF-82. Same thing again...click HEALTH CHATS under the top picture on the left handside.3. This time stay on the left side and look at the bottom corner of the box.4. Look at LEAVE A MESSAGE and click the link there.5. You will get the MESSAGE BOARDS screen.6. Look at the center and scroll to LUPUS.7. That will take you to the LUPUS MESSAGE BOARD8. You will find several folders there. You may introduce yourself in the INTRODUCE YOURSELF folder, but I will tell you that you will get a much quicker response if you post a message in the GENERAL DISCUSSION FOLDER. That is where we hang out.I have been visiting the Message Board over the past year and a half. I have met so many wonderful people who understand what you are going through. You will find people and friendships will grow so that you will have the support you need.You are free to e-mail me. I am slow at responding at times because of my own health issues and needing time for my family. I rarely use Instant Message, but some of the folks you meet may be open to that.Good luck to you! I look forward to getting to know you on the Lupus Board. There is no need to suffer alone with this. No matter how much your family loves you, there are some things they will not be able to understand because they have not experienced it for themselves.Have a Blessed evening Dorinda!:) Loretta
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